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TR: As suggested by some groups’ concerns about the human genome diversity project, much of the work to tease apart the human genome is raising significant ethical issues. What systems does society need to develop to address the dilemmas?

VMcK: This may sound simple, but airing ethical concerns, such as about the possible misuse of genetic information in connection with insurance and employment, is half the battle. Then, in part, groups such as-get ready for a mouthful-the Joint National Institutes of Health/Department of Energy Committee to Evaluate the Ethical, Legal, and Social Implications of the Human Genome Project (it’s commonly called ELSI) can study the issues and make recommendations to the federal agencies funding genome research.

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Tagged: Biomedicine

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